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Son fils souffrait de la maladie incurable de Sandhoff. L'espérance de vie des enfants atteints de cette maladie ne dépasse pas l'âge de 4 ans. Gaspard est mort à 3 ans et demi. 👉 http://bit.ly/2JVkk1h | L'Express
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La petite Emy, 22 mois, est atteinte de la maladie de Sandhoff, une pathologie neurodégénérative rare et incurable. Sa mère se bat pour qu'elle puisse suivre des essais cliniques en Angleterre. Elle a lancé un appel aux dons.Toutes les informations ici : https://bit.ly/2ODY12j | France 3 Normandie
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